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Learn more about living with lupus and treatment with BENLYSTA

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Help Others Understand Your Lupus

It is important to have a support network when you are living with lupus. By learning to talk with your family, friends, and co-workers about lupus and the effect it has on you, you're building that support network.

Talking with your family and friends

Lupus can feel overwhelming to your family and friends. They may have trouble understanding and adjusting to your diagnosis, and may feel confused, out of control, and fearful. They may need to take on added responsibilities. It is important that you have an open and honest conversation. It may also help the people in your support system to learn about lupus, so they can better understand how you're feeling.

Explaining what others can't see

Some people have difficulty understanding how you feel when you have lupus. Try taking them through a day in your life, using real-life examples to help them understand what it's like to be in your shoes. Describing the specifics may help paint a clearer picture of what it's like to live with lupus.

Bring them along

If you feel comfortable, consider bringing someone with you to your next doctor's appointment. This can give them a chance to ask questions they may have. It may also help them to better understand what you are going through.

Invite family & friends to BENLYSTA.com

You can also refer the important people in your life to BENLYSTA.com to learn more about treating lupus with BENLYSTA. They can also join BENLYSTA® Connects, our free program providing support through informative e-mails, a newsletter about BENLYSTA, and more. This information may help them to better support you on your treatment journey.

Know your lupus

Visit our FAQ section to learn more

What Is BENLYSTA?

BENLYSTA is a prescription medication used to treat adults with active systemic lupus erythematosus (SLE or lupus) who are receiving other lupus medicines.

It is not known if BENLYSTA is safe and effective in people with severe active lupus nephritis or severe active central nervous system lupus, and it has not been studied in combination with other biologics or intravenous cyclophosphamide. Use of BENLYSTA is not recommended in these situations.

Important Safety Information

The most important information to know about BENLYSTA:

BENLYSTA can cause serious side effects. Some of these side effects may cause death. It is not known if BENLYSTA causes these serious side effects.

Important Safety Information

The most important information to know about BENLYSTA:

BENLYSTA can cause serious side effects. Some of these side effects may cause death. It is not known if BENLYSTA causes these serious side effects.

Tell your healthcare professional right away if you have any of the symptoms listed below while receiving BENLYSTA

Do not receive BENLYSTA if you are allergic to belimumab or to any of the ingredients in BENLYSTA.

Before receiving BENLYSTA also discuss with your healthcare professional if you:

Women of childbearing age should use adequate birth control measures while taking BENLYSTA and for at least four months after their final treatment with BENLYSTA.

Remember to tell your healthcare professional about all the medicines you take, including prescription and non-prescription medicines, vitamins, and herbal supplements.

Possible side effects of BENLYSTA

The most common side effects of BENLYSTA include:

Tell your healthcare professional if you have any side effect that bothers you or that does not go away. These are not all the possible side effects of BENLYSTA. For more information, ask your healthcare professional.

Other Important Information

In 2 of 3 studies, fewer blacks/African Americans who received BENLYSTA responded to treatment compared to blacks/African Americans who did not receive BENLYSTA. Therefore, caution should be used when considering treatment with BENLYSTA in blacks/African Americans. It is important to discuss with your healthcare professional whether BENLYSTA is right for you. A clinical trial is ongoing to study BENLYSTA specifically in blacks/African Americans with lupus.


For more information, call the BENLYSTA® Gateway at 1-877-4-BENLYSTA (1-877-423-6597)
Monday through Friday, 8 AM to 8 PM Eastern Time.

You are encouraged to report negative side effects of prescription drugs to the FDA.
Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.