Help Others Understand Your Lupus
It is important to have a support network when you are living with lupus. By learning to talk with your family, friends, and co-workers about lupus and the effect it has on you, you're building that support network.
Talking with your family and friends
Lupus can feel overwhelming to your family and friends. They may have trouble understanding and adjusting to your diagnosis, and may feel confused, out of control, and fearful. They may need to take on added responsibilities. It is important that you have an open and honest conversation. It may also help the people in your support system to learn about lupus, so they can better understand how you're feeling.
Explaining what others can't see
Some people have difficulty understanding how you feel when you have lupus. Try taking them through a day in your life, using real-life examples to help them understand what it's like to be in your shoes. Describing the specifics may help paint a clearer picture of what it's like to live with lupus.
Bring them along
If you feel comfortable, consider bringing someone with you to your next doctor's appointment. This can give them a chance to ask questions they may have. It may also help them to better understand what you are going through.
Invite family & friends to BENLYSTA.com
You can also refer the important people in your life to BENLYSTA.com to learn more about treating lupus with BENLYSTA. They can also join BENLYSTA® Connects, our free program providing support through informative e-mails, a newsletter about BENLYSTA, and more. This information may help them to better support you on your treatment journey.