You live with lupus or lupus nephritis every day. But you may see your doctor only once every few months, and your time together is valuable.
Getting to know your doctors
If you have been diagnosed with lupus (systemic lupus erythematosus or SLE), you will probably go to see a rheumatologist. A rheumatologist is a doctor who has had special training in autoimmune or rheumatic conditions that often affect the joints, skin, muscles, and bones.
If you have been diagnosed with lupus nephritis (LN), you will probably be treated by a nephrologist in addition to a rheumatologist. A nephrologist is a doctor who specializes in diseases and conditions that affect the kidneys.
Make the Most of Your Time
Your time with your doctor is important. With appointments lasting about 15 minutes or less, being prepared will help you get the most out of your time.
Make the Most of Your Appointment
Below are a few strategies to help ensure that you are communicating all the important things about your health to your healthcare team, including doctors and nurses. Learn these tips and use them at your next appointment.
Strategies to Help You Make the Most of Your Doctor’s Appointments
Keep track of how you’re feeling. Doing so can give your healthcare team a clear and accurate picture of what’s going on with your health.
Download the Patient Diary and use it to track how you are doing. Do this when you have a moment to talk to a loved one.
Get an appointment buddy lined up.
Take a trusted friend or family member with you to appointments. They can act as both a supporter and a note-taker.
Ask a trusted friend or family member to be your buddy well in advance of your next medical appointment, so that they can take time off if needed. Do this a few weeks before your medical appointment.
Make sure you have all of your medical records with you. If you’ve visited another healthcare team or specialist since your last visit to this doctor, make sure you bring copies of any documents or notes with you. This goes for any visits to emergency or urgent care clinics, too.
Be ready to answer some questions your healthcare team may have for you.
Prepare yourself for things your healthcare team might ask you by writing down your answers to the following common questions:
- How have you been feeling physically?
- How have you been feeling emotionally?
- Has anything significant happened that I should know about?
- Are there any new problems that I should be aware of? (Note: it’s okay if you are not sure whether they are lupus-related.)
Make the Most of Your Lupus or Lupus Nephritis Treatment
Whether you’re just getting started or you’ve been taking BENLYSTA for a while, BENLYSTA Cares offers resources created with you in mind. Sign up below to start receiving support from BENLYSTA Cares. BENLYSTA Cares has been carefully designed with real patient input to provide the support and resources needed to answer questions and help manage your treatment with BENLYSTA.
Sign up today to receive:
- Information about your financial options, including the BENLYSTA Co-pay Program
- Access to a BENLYSTA Nurse Ambassador*
- Support with self-injection training
- Instructions on how to receive your free sharps disposal container and BENLYSTA carrying case
- A free subscription to Connections, a magazine filled with lifestyle content and tips for living with lupus
*Nurses from BENLYSTA Cares do not give medical advice, and will direct you to your healthcare provider for any disease-, treatment-, or referral-related questions.
Sign up now for tools and resources from BENLYSTA Cares.
Frequently Asked Questions
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