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Patient Stories

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Lupus Information & Patient Stories | BENLYSTA (belimumab)

Want to learn more about lupus or BENLYSTA? Patients taking BENLYSTA will share their stories about lupus diagnosis, living with lupus, and starting and continuing treatment with BENLYSTA.

Introducing the Experience Series

See how patients on BENLYSTA living with lupus, their support networks, and rheumatologists fight together against the disease.

TRANSCRIPT

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Getting Started With BENLYSTA

Learn more about starting treatment with BENLYSTA from actual patients.

TRANSCRIPT

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Considering Infusion with BENLYSTA

Learn from patients about starting intravenous (IV) infusions of BENLYSTA.

Every person's treatment experience is unique. But with the video series, we hope you will gain a greater understanding about BENLYSTA and how it has impacted other patients' lives.

TRANSCRIPT

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut gravida bibendum luctus. Curabitur pharetra auctor arcu ac maximus. Nunc dignissim velit sed eros iaculis imperdiet. Nunc faucibus augue quis lectus vulputate, non imperdiet velit consequat. Maecenas mollis lorem in mauris pretium sodales non quis lacus. Pellentesque condimentum molestie tortor, eget interdum sapien volutpat non. Phasellus varius metus et turpis sagittis vehicula. Cras feugiat luctus urna sed pretium. Morbi eget eros iaculis, vestibulum dui ut, scelerisque eros. Pellentesque vitae ipsum id metus facilisis porta eget id felis. Nullam tristique nibh vel imperdiet efficitur. Nullam at elementum nulla. Morbi placerat eros et mollis venenatis.

BENLYSTA Cares Logo

No two people have the same experience with lupus. That’s why BENLYSTA Cares is there for you every step of the way, from addressing coverage questions to over-the-phone support and education from trained nurses.*

*Nurses from BENLYSTA Cares do not give medical advice. They are only able to answer questions about BENLYSTA. These may include help with self-injections, guidance for getting BENLYSTA, answers about the co-pay program, and other general information. They will direct you to your healthcare provider for answers to other types of questions.

DISCOVER BENLYSTA CARES

Frequently Asked Questions

  • No, BENLYSTA is a biologic, not a steroid. It is a protein that can help reduce abnormal immune system activity that contributes to lupus disease activity.
     

    Learn more about how BENLYSTA works

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  • Each insurance policy is different and costs depend on your individual plan.

    To understand your cost for BENLYSTA, contact your insurance company or call BENLYSTA Cares at 1-877-4-BENLYSTA (1-877-423-6597). BENLYSTA Cares will connect you to BENLYSTA Gateway, which can research your estimated cost for BENLYSTA under your insurance policy.

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  • BENLYSTA is not for everyone. Ask your doctor if BENLYSTA is right for you. Here are a few things you and your doctor may consider before prescribing BENLYSTA:

    • You have already been diagnosed with systemic lupus erythematosus (SLE).
    • You are currently taking medicines to help manage your lupus.
    • Your lupus has continued to be active.

     

    Remember, only you and your doctor can decide whether BENLYSTA is right for you.

     

    Other information to consider

    • It is not known if BENLYSTA is safe and effective in people with severe active lupus nephritis or severe active central nervous system lupus.
     

    BENLYSTA and pregnancy

    • Before you receive BENLYSTA, tell your healthcare provider if you are pregnant or plan to become pregnant. It is not known if BENLYSTA will harm your unborn baby.

    • You should talk to your healthcare provider about whether to prevent pregnancy while on BENLYSTA. If you choose to prevent pregnancy, you should use an effective method of birth control while receiving BENLYSTA and for at least 4 months after the final dose of BENLYSTA.

    Tell your healthcare provider right away if you become pregnant during your treatment with BENLYSTA or if you think you may be pregnant.

    • If you become pregnant while receiving BENLYSTA, talk to your healthcare provider about enrolling in the BENLYSTA Pregnancy Registry. You can enroll in this registry by calling 1-877-681-6296. The purpose of the registry is to monitor the health of you and your baby.

    • Tell your healthcare provider if you are breastfeeding or plan to breastfeed. It is not known if BENLYSTA passes into your breast milk. You and your healthcare provider should decide if you will receive BENLYSTA and breastfeed.

     

    This is not the full list of the things your healthcare professional will need to consider before prescribing BENLYSTA. For more information, refer to the Medication Guide for BENLYSTA and talk to your doctor.

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Want to learn more about resources for BENLYSTA?

If you are just getting started with BENLYSTA, or have been taking BENLYSTA for a while, BENLYSTA Cares offers support and ongoing resources throughout the course of your treatment. Sign up now for BENLYSTA Cares

Looking to learn more about lupus and BENLYSTA?

Find support groups in the lupus community. Plus we offer a variety of support materials about lupus that may help you find the information you need.

Get more tools and resources for BENLYSTA