banner-building-a-support-team

Building a Support Network

Get tips on how to share your lupus experiences with your support network.

Help Others Understand Lupus

 

By sharing your experiences with close friends and family, you can help others understand the challenges you face with your lupus, and build stronger connections.

Icon: Support

Tip 1: Talk to Your Loved Ones

 

Why should I do this? 

The fact that you have lupus can feel overwhelming to your family and friends. They may have trouble understanding and adjusting to your diagnosis. They may feel helpless, confused, or fearful. They may also need to take on added responsibilities.  
 
What should I do?  
Try to have an open and honest conversation. It may also help the people in your support system to learn about lupus (see tip 4), so they can better understand how you’re feeling.

 

icon-information

Tip 2: Help Others See Things From Your Perspective

 

Why should I do this? 

Some people have difficulty understanding how you feel when you have lupus. 

 

What should I do? 

Try talking them through a day in your life, using real-life examples to help them understand what it’s like to have lupus. Put your symptoms and how you are feeling into terms that are easier for others to understand. 

 

Icon: Learning

Tip 3: Give Them Learning and Support Tools 

 

Why should I do this?  
As the saying goes, knowledge is power. Having information on lupus and treatments may help your loved ones better support you during your treatment experience.  
 

What should I do?  
You can refer the important people in your life to this website to learn more about treating lupus with BENLYSTA.

 

Icon: Checklist

Tip 4: Consider Taking Someone Along to Your Appointment 

 

Why should I do this? 

Your loved ones may have questions about lupus. Your appointment may give them the chance to ask their questions. It may also help them better understand what you are going through. They can help remind you what your doctor told you during the appointment as well. 

Image: Patient in Blanket

Facing a Lupus Diagnosis

Learn from other people who are living with lupus. Follow their diagnosis stories and see how they met this challenge and moved forward.

TRANSCRIPT

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut gravida bibendum luctus. Curabitur pharetra auctor arcu ac maximus. Nunc dignissim velit sed eros iaculis imperdiet. Nunc faucibus augue quis lectus vulputate, non imperdiet velit consequat. Maecenas mollis lorem in mauris pretium sodales non quis lacus. Pellentesque condimentum molestie tortor, eget interdum sapien volutpat non. Phasellus varius metus et turpis sagittis vehicula. Cras feugiat luctus urna sed pretium. Morbi eget eros iaculis, vestibulum dui ut, scelerisque eros. Pellentesque vitae ipsum id metus facilisis porta eget id felis. Nullam tristique nibh vel imperdiet efficitur. Nullam at elementum nulla. Morbi placerat eros et mollis venenatis.

Working With Your Healthcare Team

Learn about the importance of working with your healthcare team to better understand and treat lupus.

TRANSCRIPT

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut gravida bibendum luctus. Curabitur pharetra auctor arcu ac maximus. Nunc dignissim velit sed eros iaculis imperdiet. Nunc faucibus augue quis lectus vulputate, non imperdiet velit consequat. Maecenas mollis lorem in mauris pretium sodales non quis lacus. Pellentesque condimentum molestie tortor, eget interdum sapien volutpat non. Phasellus varius metus et turpis sagittis vehicula. Cras feugiat luctus urna sed pretium. Morbi eget eros iaculis, vestibulum dui ut, scelerisque eros. Pellentesque vitae ipsum id metus facilisis porta eget id felis. Nullam tristique nibh vel imperdiet efficitur. Nullam at elementum nulla. Morbi placerat eros et mollis venenatis.

What Kind of Medicine is BENLYSTA?

 

BENLYSTA (belimumab) is a biologic therapy, not a steroid. It is taken in addition to your other lupus medications and is available in three options:

  • an autoinjector, for adults, you self-inject
  • a prefilled syringe, for adults, you self-inject
  • an intravenous (IV) infusion, for adults and children ages 5 and above, a healthcare provider administers

 

Learn more about BENLYSTA

Frequently Asked Questions

  • BENLYSTA Cares offers resources created with you in mind—including educational materials, and on-call nurse* guidance to answer questions about BENLYSTA.

     

    BENLYSTA Gateway provides coverage information and information on the BENLYSTA Co-pay Program.

     

    * Nurses from BENLYSTA Cares do not give medical advice. They are only able to answer questions about BENLYSTA. These may include help with self-injections, guidance for getting BENLYSTA, answers about the co-pay program, and other general information. They will direct you to your healthcare provider for answers to other types of questions.

    Was this helpful?

    Yes, it was helpful.
    No, it was not helpful.
  • Download our Doctor Discussion Guide for a detailed and helpful checklist of things you can do to help make your next appointment a success.

    Was this helpful?

    Yes, it was helpful.
    No, it was not helpful.

Learn about treatment from BENLYSTA patients

Real BENLYSTA patients will share their experiences living with lupus and tips for starting BENLYSTA treatment. 

Watch and discover now

 

Want to learn about lupus and BENLYSTA treatment?

Find support groups in the lupus community. Plus we offer a variety of support materials about lupus that may help you find the information you need.    

Get more tools and resources for BENLYSTA