Help Others Understand Your Lupus

BENLYSTA Cares is here for you every step of the way with ongoing support.

Living with lupus can be a challenge. That’s why having a support network is important.

By sharing your experiences with your family, friends, and co-workers about lupus and the effects it has on you, you can build a stronger network.

Here Are 4 Simple Ways to Build Your Network:

Tip 1: Talk to Your Loved Ones.

Why should I do this?

Lupus can feel overwhelming to your family and friends. They may have trouble understanding and adjusting to your diagnosis. They may feel helpless, confused, or fearful. They may also need to take on added responsibilities.

What should I do?

Try and have an open and honest conversation. It may also help the people in your support system to learn about lupus (see step 4), so they can better understand how you're feeling.

Tip 2: Let Them Walk in Your Shoes.

Why should I do this?

Some people have difficulty understanding how you feel when you have lupus.

What should I do?

Try taking them through a day in your life, using real-life examples to help them understand what it's like to be in your shoes.

Tip 3: Give Them Learning and Support Tools.

Why should I do this?

As the saying goes, knowledge is power. Having information on lupus and treatments may help your loved ones better support you on your treatment journey.

What should I do?

You can also refer the important people in your life to this website to learn more about treating lupus with BENLYSTA. They can also join BENLYSTA Cares, our free program providing support through informative e-mails, a newsletter about BENLYSTA, and more.

Tip 4: Consider Bringing Someone Along to Appointments.

Why should I do this?

This can give your loved one a chance to ask questions that they may have. It may also help them to better understand what you are going through. It can also be helpful to have a second set of eyes and ears along when you’re trying to remember everything the doctor is telling you.